Hospitalspause - Hospital break

Der er gået 16 dage siden vi var på Riget og fik at vide, at Arthur har Hyperekplexia. Han har ikke haft nogle anfald.

Vi har uendelig mange spørgsmål.
Vi har fortalt venner og familie, som selvfølgelig har fulgt Arthurs forløb, om Arthurs diagnose.
Alle har spurgt om tusinde ting, vi slet ikke ved.
Vi har googlet løs og læst en masse om Hyperekplexia, men på en eller anden måde, er det som om vi ingenting ved. Jo flere sites jeg har læst, desto mere mættet er jeg blevet. 
Min veninde Sara tilbød at læse om Hyperekplexia for mig, så jeg ikke var ved at kvæles i hvor svært det var, og det var det bedste tilbud vi kunne få!

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Hospital break

It’s been 16 days since we were at Riget Hospital and got informed that Arthur has Hyperexplexia. He has not had any attacks.

We have an infinite amount of questions.

We have told friends and family, whom of course has followed Arthur’s progression, about Arthur’s diagnosis.

Everyone has asked a thousand things, that we don’t even know.

We have googled a lot and read loads about Hyperexplexia, but in some way, it is as if we don’t know a thing. The more sites I’ve read, the more filled up have I become.

My friend Sara offered to read about Hyperexplexia for me, so that I didn’t have to choke up in how hard it was, and that was the best offer we could get!