14. februar 2012
For tre år siden blev min søn, Arthur, født.
Fire måneder senere fik han den sjældne diagnose Startle Disease - Hyperekplexia.
Denne blog skal fortælle Arthurs historie og beskrive hvordan han udvikler sig.
De første mange indlæg er skrevet ud fra notater og tankestrømme og cirka-datoer.
february 14th 2012
My son Arthur was born three years ago,
Four months later he was diagnosed with a rare disease called Startle Disease aka. Hyperekplexia. The purpose of this blog is to tell his story and describe his development. The first many entries are written on the base of my notes, thoughts and the dates are not exact.
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